Peter has good news and the NIHR agrees that the voices of people with dementia do count!
Hello. Peter Crouch here. Happy to be reporting a really good week. I finally got an appointment for an MRI of my sluggish intestines.
Then I received an acknowledgement from the National Institute of Health Research, that’s NIHR, seeming to agree with my contention that living with dementia in our heads gives us a different perspective on research from people living with dementia in the house. We want research on how to avoid the need for care; they mostly think care is all that needs to be researched about dementia. And that researchers should wherever possible involve people with a diagnosis rather than people who know someone with a diagnosis.
Then a great flying lesson, with a bit of formation flying, giving me an even greater appreciation for the show the Red Arrows put on over Swansea Bay last weekend, and my introduction to cloud surfing, weaving around small clouds which filled the sky over the Gower with the instructor keeping his eyes and ears open to make sure we didn’t come across anybody else doing the same thing.
And I finally got to land it unnaided.The scrappiness of the manouver concerning the instructor had not overriden my control. Brave chap!
But the culmination was finally, after two years trying to stir up interest, finding somebody who was going to try to produce my Quovadis App so I can ditch the Post It notes for remembering where I am going and what for. I have wild hopes that it will be ready in time for the Technology for Dementia event in Manchester in November. Watch this space!




